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Warning Message New York is unable to fulfill requests at this time. The VRDBS is compliant with regulations mandated by H.R. 1281.

Terms and Conditions

The NBSTRN Virtual Repository for Dried Blood Spots is a centralized, web-based tool to access newborn screening residual dried blood spots (DBS) and related information for newborn screening related research and program development. The WWW.VRDBS.NBSTRN.ORG website (the "Site") is produced by and for the NBSTRN by the National Coordinating Center, developed by the American College of Medical Genetics (the "ACMG") (hereinafter, the NBSTRN, the National Coordinating Center, and the ACMG, when referred to collectively, shall be referred to as the "Network"). All use of the Site is subject to the Terms and Conditions set forth in the remainder of this agreement.

  • Required Actions:
    • All users must be properly identified and verified prior to being granted access to this system.
    • Passwords must be a minimum of eight characters in length and must contain both alpha-numeric and special characters (abc-0123-!@#$).
    • Default passwords will be immediately changed when assigned.
    • Users must never reveal their passwords to anyone.
    • Passwords should not be constructed from obvious personal data (i.e. social security number, telephone numbers, relative’s names, pet’s name, etc.).
    • All users must read and submit their user agreement prior to being granted access to this system.
  • Prohibited Actions:
    • Users are prohibited from sharing account ID and account passwords with anyone else.
    • Users are prohibited from attempting to access other user accounts not assigned to them.
    • Peer-to-Peer (P2P) software is prohibited for use on this website.
    • Unauthorized scanning of this website is prohibited.
    • Unauthorized installation of software on this website is prohibited.
    • Users are to report suspicious activity, malicious code infection, or perceived compromise affecting this system.
  • Acknowledgement of Monitoring:
    • This system is a U.S. Government provided system and usage constitutes consent to monitoring and auditing of interactions with this system.
    • Monitoring includes the tracking of transactions within the systems network, user login, user logoff, website interactions, and other activities.
    • VRDBS System administrators will have access to monitoring information that will identify user activities taking place on the system. Therefore, users are made aware that no expectation of privacy is granted when using or storing data on this information system.
  • By entering and using the Site, you acknowledge that you have read and understood such Terms and Conditions and that you agree to abide by them.
  • The Site is designed and intended for informational and scientific purposes only.
  • The Network does not endorse, guarantee, warrant, or recommend any information, products or services discussed on the Site or linked from the Site.

No Medical Advice or Physician-Patient Relationship. The content of the site is provided for informational and scientific purposes only and is not, and should not be considered to be, medical advice. This information is not intended to create, and receipt of it does not constitute a consultation or create a physician-patient relationship. The content is not for use in the diagnosis or treatment of any individual condition or as a substitute for a consultation with a licensed medical professional. The content should not be considered complete; is not exhaustive; and does not cover all diseases, ailments, physical conditions, or their diagnosis intended or treatment.

No Legal Advice or Attorney-Client Relationship. The content of the site is not intended as, and should not be construed as, legal advice. Adherence to any information or suggestions contained in this document is strictly voluntary and does not ensure compliance with federal or state law. For specific legal advice regarding the law applicable to your situation, seek the advice of legal counsel.

Information Presented by the Network. The information provided by the Network on the Site or provided to users through the Site, including, but not limited to, information from and about state public health programs, state rules and regulations, searchable listing of DBS available from participating states, and data elements collected by states in connection with the DBS are provided for informational and scientific purposes only. Further, although the Network endeavors to ensure the accuracy and reliability of information provided on or through the Site, it does not guarantee the accuracy, completeness, efficacy or timeliness of such information, and therefore, makes no representation or warranty regarding the same. The Network does not endorse, guarantee, warrant, or recommend any information, products or services discussed on the Site or linked from the Site. Reliance on any information, products or services appearing on the Site that is provided by the Network or Network employees is solely at your own risk.

Availability and Quality of Dried Blot Spots. The Network does not guarantee that DBS will be available at the time of your request and therefore, makes no representation or warranty regarding the same. Further, the Network does not represent, guarantee or warrant the validity or quality of the DBS or the accuracy or completeness of the associated data elements made available on or through the Site. Reliance on any information, products or services appearing on the Site that is provided by the Network or Network employees is solely at your own risk.

Liability of the Network and its Licensors. The Site and information provided on the Site is provided on an "as is" and "as available" basis, with all faults. Neither the Network nor any person associated with the Network makes any warranty or representation with respect to the quality, accuracy, or availability of the Site. Specifically, but without limiting the foregoing, neither the Network nor anyone associated with the Network warrants or represents that the Site or the information provided on the Site will be accurate, reliable, error-free, uninterrupted; that defects will be corrected; that the Site or the servers that make them available are free from viruses or other harmful components; or that the Site will otherwise meet your needs or expectations. The Network disclaims all warranties of any kind, express or implied, including any warranties of merchantability, fitness for a particular purpose or non-infringement. In no event will the Network or its contractors be liable for any damages of any kind, under any legal theory, arising out of or in connection with your use of, or inability to use, the Site, including any direct, indirect, incidental, special, consequential or punitive damages, including, but not limited to, lost profits or damages resulting from delay, interruption in service, viruses, deletion of files or electronic communications, or errors, omissions, or other inaccuracies in the Site or the content transmitted on the Site or personal injury, whether or not there is negligence by the Network and whether or not the Network has been advised of the possibility of any such damages.

User Obligations. You agree to comply in all respects with these Terms and Conditions as they may be amended, updated or revised from time to time. Your failure to comply with the provisions of copyright and trademark restrictions may expose you to civil and/or criminal liability.

Copyright and Trademark Notices. The content of material provided by the Network on the Site is copyrighted by the Network or used by the Network under license or other legal authority. The Network and its licensors retain all copyrights and other proprietary rights in or relating to any content, including any software, provided on the Site. All rights are reserved and such content may not be reproduced, downloaded, modified, published, displayed, disseminated, or transferred, in any form or by any means, except with the prior written agreement of the Network or as indicated below. You may download and print a small number of copies of the content for scientific or educational uses. You may not sell, transfer, reproduce, transmit, distribute, perform or display such content for any commercial purpose without the prior express written consent of the Network.

LINKS TO OTHER SITES

The Site contains links to third party websites. These links are provided solely as a convenience to users and not as a guarantee, warrantee, endorsement or recommendation by the Network of the content on such third-party websites or as an indication of any affiliation, sponsorship or endorsement of such third party websites. The Network is not responsible for the content of linked third-party sites and does not make any representations regarding the privacy practices of, or the content or accuracy of materials on, such third-party websites. Furthermore, The Network is not responsible for webcasting or any other form of transmission received from any linked website. If you decide to access linked third-party websites, you do so at your own risk. Your use of third-party websites is subject to the terms and conditions for such sites.

COMPLAINT PROCEDURES

Any suspected violations of these Terms and Conditions or misuse of the Site should be immediately reported to nbstrn@nbstrn.org.

MISCELLANEOUS CONDITIONS OF USE

Resolution and Disputes. These Terms and Conditions shall be governed in all respects by and construed in accordance with the laws of the State of Maryland, without regard to its conflicts of law principles. These Terms and Conditions, as they may be amended from time to time, completely and exclusively state the agreement between you and the Network with respect to the Site, and no other terms that may have been communicated to you orally or in any other manner shall have any force or effect. Any cause of action you may have that arises out of or relates to the Site must be commenced within one (1) year after the claim or cause of action arises or such claim or cause of action is barred. Exclusive jurisdiction over any cause of action arising out of or relating to the Site shall be in the state or federal courts located in the State of Maryland. You agree and submit to the jurisdiction of such courts.

If any part of the Terms and Conditions are unenforceable, the unenforceable part shall be construed to reflect, as nearly as possible, the original intentions of the parties. The other provisions of the Terms and Conditions shall remain in full force and effect. The Network's failure to insist upon or enforce strict performance of any provision of the Terms and Conditions shall not constitute a waiver of the provision. Neither a course of dealing or conduct between you and the Network nor any trade practices shall be deemed to modify the Terms and Conditions.

AGREEMENT

BY ENTERING AND USING THE VRDBS.NBSTRN.ORG SITE, YOU ACKNOWLEDGE AND AGREE THAT YOU HAVE READ AND UNDERSTAND THESE TERMS AND CONDITIONS OF USE OF VRDBS.NBSTRN.ORG, THAT THE PROVISIONS, DISCLOSURES AND DISCLAIMERS SET FORTH ABOVE ARE FAIR AND REASONABLE, AND THAT YOUR AGREEMENT TO FOLLOW AND BE BOUND BY THEM IS VOLUNTARY AND IS NOT THE RESULT OF FRAUD, DURESS OR UNDUE INFLUENCE EXERCISED UPON YOU BY ANY PERSON OR ENTITY.

YOU ALSO AGREE TO INDEMNIFY AND HOLD HARMLESS THE NETWORK; NETWORK MEMBERS AND THEIR OFFICERS, DIRECTORS, MEMBERS, AGENTS, AND AFFILIATES; THIRD-PARTY INFORMATION PROVIDERS; LICENSORS; AND OTHERS INVOLVED IN THE DELIVERY OF THE WEBSITE OR THE DELIVERY OF INFORMATION, PRODUCTS OR SERVICES OVER THE WEBSITE, FROM AND AGAINST ANY AND ALL LIABILITIES, EXPENSES, DAMAGES, AND COSTS, INCLUDING REASONABLE ATTORNEY'S FEES, FROM ANY CLAIM, COMPLAINT OR DAMAGE ARISING OUT OF OR IN CONNECTION WITH YOUR USE OF THE SITE, INCLUDING BUT NOT LIMITED TO ANY VIOLATION BY YOU OF THESE TERMS AND CONDITIONS.