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Privacy Policy

The Network provides the following privacy policy (the "Privacy Policy") in order to demonstrate its firm commitment to privacy. The Network may need to change this Privacy Policy from time to time in order to address new issues and to reflect changes on our Site. Please refer back to this Privacy Policy regularly because your use of the Site signifies that you agree to be bound by the terms and conditions of this Privacy Policy, as amended from time to time.

  1. Collection of Personal Information. The Network may ask for information about our users at the point of registration. Such information may include name, age, education level, sex, occupation, e-mail address, zip code and areas of interest. This information tells us about the types of people (e.g., investigators vs. state health department officials) who use the Site, allows us to verify a user's identity and genuine research interest, and helps us tailor the Site to our audience.
  2. Use of Personally Identifiable Information. The Network will not sell or otherwise transfer or disclose personally identifiable information to third parties without the user's prior consent except as may be required by federal, state or local law, or by exigent circumstances. That means that the Network will not disclose your name, e-mail address, street address or phone number without your consent. We may use your personally identifiable information to compile and display content and information that we think you might be interested in. The Network also may use your profile information on an aggregate basis - without personal identifiers - to develop and display new features and content for the Site, and to provide others with aggregate information about our users and the usage patterns of the Site. The Network also may perform statistical analyses of user behavior (on an aggregate basis) in order to measure interest in and use of the various areas of the Site.
  3. Cookie Technology. The Network collects non-personal identification information through the use of "cookie" technology and/or Internet Protocol ("IP") address tracking. Cookies are small text files a website can use to recognize repeat users and facilitate the user's ongoing access to and use of the site. Non-personal identification information might include the browser used by the user, the type of computer, the operating systems, the Internet service providers and other similar information. The Site may also automatically gather information about the areas the user visits on the Site and about the links the user may select from within the Site to other sites. Most browsers are set to accept cookies. You can set yours to refuse cookies, or to alert you when cookies are being sent.
  4. Password Protected Areas. The Network does not warrant or represent that the information you submit to the Site will be protected against loss, misuse, or alteration by third parties. You are responsible for taking all steps to ensure that no other person has access to your password or account. It is your sole responsibility to (1) control the dissemination and use of your password; (2) authorize, monitor, and control access to and use of your password; and (3) promptly inform the Network of any need to deactivate your user name or password. You permit the Network and all other persons or entities involved in the operation of the website to transmit, monitor, retrieve, store and use your information in connection with the operation of the VRDBS.NBSTRN.ORG Site. The Network does not and cannot assume any responsibility or liability for any information submitted by you to the Site or for your or third parties' use or misuse of information transmitted or received through the Site.
  5. Links to other sites. Users will find content on the Site that enables linking to third party sites. These third party sites may have their own privacy policies or no policy at all. The Network Privacy Policy does not apply to such other sites. The Network has no control over and is not responsible for the content displayed on such sites, nor over the measures, if any, that are taken by such sites to protect the privacy of user information. Users should check the privacy policy of any third party site before providing personally identifiable information.
  6. Security of Information. The Network is committed to keeping user information secure, and uses industry standard technology in an attempt to achieve that goal.
  7. Release of Information to Comply with Legal Requirements or Government Request. The Network reserves the right at all times to disclose any information uploaded to or appearing on the Site to the extent necessary to comply with any applicable law, regulation, legal process, subpoena or governmental request.
  8. Removal of Information and Termination of Usage. The Network reserves the right, but does not assume any responsibility, to (1) remove from the Site any material posted by you which the Network, in its sole discretion, deems inconsistent with these Terms and Conditions; and/or (2) terminate your access to all or part of the Site. However, the Network can neither review all material prior to transmission on the website nor ensure prompt action with respect to objectionable material after it is transmitted on the Site. Accordingly, the Network assumes no liability for any action or inaction regarding transmissions, communications, or other content that is provided by third parties. The Network reserves the right to take any action it deems necessary to protect the personal safety of users of the Site and the public, however, the Network has no liability or responsibility to anyone for performance or nonperformance of the activities in this paragraph.
  9. Parental Permission. The Network does not intend that children will use the Site. Some of the information available on the Site may not be appropriate for children. USERS UNDER 18 YEARS OF AGE MUST OBTAIN PARENTAL PERMISSION TO USE THE SITE. Adults should not assist unauthorized children to access the Site. The Network will not knowingly collect, use or disclose personally identifiable information about visitors under 18 years of age.
  10. Contact Information. The Network welcomes your comments and questions. All comments and questions regarding this Privacy Policy should be directed to the Project Manager by email at nbstrn@nbstrn.org.

AGREEMENT

BY ENTERING AND USING THE VRDBS.NBSTRN.ORG SITE, YOU ACKNOWLEDGE AND AGREE THAT YOU HAVE READ AND UNDERSTAND THESE TERMS AND CONDITIONS OF USE OF VRDBS.NBSTRN.ORG, THAT THE PROVISIONS, DISCLOSURES AND DISCLAIMERS SET FORTH ABOVE ARE FAIR AND REASONABLE, AND THAT YOUR AGREEMENT TO FOLLOW AND BE BOUND BY THEM IS VOLUNTARY AND IS NOT THE RESULT OF FRAUD, DURESS OR UNDUE INFLUENCE EXERCISED UPON YOU BY ANY PERSON OR ENTITY.

YOU ALSO AGREE TO INDEMNIFY AND HOLD HARMLESS THE NETWORK; NETWORK MEMBERS AND THEIR OFFICERS, DIRECTORS, MEMBERS, AGENTS, AND AFFILIATES; THIRD-PARTY INFORMATION PROVIDERS; LICENSORS; AND OTHERS INVOLVED IN THE DELIVERY OF THE WEBSITE OR THE DELIVERY OF INFORMATION, PRODUCTS OR SERVICES OVER THE WEBSITE, FROM AND AGAINST ANY AND ALL LIABILITIES, EXPENSES, DAMAGES, AND COSTS, INCLUDING REASONABLE ATTORNEY'S FEES, FROM ANY CLAIM, COMPLAINT OR DAMAGE ARISING OUT OF OR IN CONNECTION WITH YOUR USE OF THE SITE, INCLUDING BUT NOT LIMITED TO ANY VIOLATION BY YOU OF THESE TERMS AND CONDITIONS.