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Warning Message New York is unable to fulfill requests at this time. The VRDBS is compliant with regulations mandated by H.R. 1281.
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Overview

Resources

VRDBS User Guide

Helpful Links

Help Topics

Thank you for your interest in the Virtual Repository. Looking for an explanation regarding a site feature or process? Read below to find out more.

Background

  • About the Virtual Repository of Dried Blood Spots (VRDBS)
  • About the Newborn Screening Translational Research Network (NBSTRN)

The top ten most frequently asked help questions

  1. What are my eligibility criteria to acquire access to the VRDBS?
  2. How long before I am notified of my registration status?
  3. If I find DBS specimens from multiple states, do I have to deal with each state individually?
  4. How do I save and manage my searches for DBS specimens?
  5. How long does it take from the time I submitted a request until the DBS specimens are shipped?
  6. How do I find the costs for retrieving and shipping the DBS specimens I want to obtain?
  7. How do I find out more state specific information regarding MTA, IRB, and DBS restrictions?
  8. What are my responsibilities for the DBS specimens once I receive them?
  9. Do I have any obligation to share my research findings with the NBSTRN?
  10. What recourse do I have if a participating state rejects my request for DBS specimens?

Additional Resources

Contact Us*

American College of Medical Genetics and Genomics (ACMG)
7101 Wisconsin Avenue, Suite 1101
Bethesda, Maryland 20814

Phone: 301-718-9603
Fax: 301-718-9604

nbstrn@nbstrn.org
www.acmg.net

*Office Hours 9 a.m. - 5 p.m. EST


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